Tayen’s Story: “Living Paintings provide a lifeline”
November 5, 2015

Kali Gilbert and her husband Kev have four children, the youngest of which is Tayen, known to everyone as Tots.

Tots began showing symptoms of a problem with her eyesight when she was just 8 months old: after months of severe developmental regression and decline, Tots was diagnosed with a condition called neurofibromatosis or NF1 when she was nearly two years old. In Tots’ case, the condition had caused tumours all the way down both optics nerves, into the back of her brain.

Within six weeks of the diagnosis, she was completely blind.

For Kali and her family, Living Paintings provided a lifeline at an incredibly difficult point in their lives.

In Kali’s words: “Tayen used to love reading before she lost her sight, and I thought her love of reading had gone. And Living Paintings has given that back to her.”

Watch Tayen’s story:

 


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